Louisiana Sickle Cell Commission public meetings in 2023
5 substantive meetings from 2023, with official agendas or minutes and plain-English summaries.
Louisiana Sickle Cell Commission
The Commission is meeting to review reports on medical service delivery, patient navigation, and education. Members will discuss proposed revisions to sickle cell laws and proposed LSCC by-laws.
- Proposed revisions to sickle cell laws
- Proposed LSCC by-laws
- Update on CDC funding opportunity and Skylar-Cooper Database
- Development of a 2024 webinar series and symposium
- Review of Care Coordination Toolkit
The commission met to discuss sickle cell data collection, Medicaid updates, and the development of a care coordination toolkit. No formal votes were taken as the chair announced that a quorum was not present.
- No formal decisions made due to lack of quorum
- Proposed by-laws submitted for member review and feedback
- Proposed revisions to sickle cell laws submitted for member review
Louisiana Sickle Cell Commission
The Louisiana Sickle Cell Commission is meeting to address commissioner vacancies and review the 2024 meeting schedule. The body will discuss data surveillance, patient navigation funding, and medical delivery reports including Bluebird Gene Therapy.
- Review of commissioner vacancies including Medicaid Director and Governor-appointed persons living with SCD
- Update on CDC funding opportunity and the Skyler Cooper Database
- Presentation and report on Bluebird Gene Therapy
- Discussion on funding for patient navigation
- Update on the Emergency Provider Toolkit and SCD Awareness/Education Campaign
The Commission unanimously approved the previous meeting minutes and announced the 2024 meeting dates and locations. Members received updates on data management systems, CDC funding, and a new follow-up monitor for newborn screening results.
- Approved previous meeting minutes (unanimous)
- Established 2024 meeting schedule for January 9, April 9, July 16, and October 8
Louisiana Sickle Cell Commission
The commission will conduct officer elections for Chairman and Vice Chairman. The agenda includes discussions regarding commissioner vacancies, CDC funding opportunities, and medical service delivery data.
- Election of Chairman and Vice Chairman
- Review of three commissioner vacancies
- Report on CDC funding opportunity
- Review of medical service/delivery data and care gaps
- Discussion of Emergency Provider Toolkit
The Commission elected a new Chairman and Vice Chairman and adopted minutes from five previous meetings. Members discussed CDC grant opportunities for a database and the development of an emergency provider toolkit for pain management.
- Elected Erin Fulbright as chairman
- Elected Donna Thaxton as vice chairman
- Adopted minutes from May 9, 2023, August 15, 2022, December 6, 2022, February 7, 2023, and March 2, 2023
Louisiana Sickle Cell Commission
The Commission is meeting to elect a Chairman and Vice Chairman. Members will also discuss the SCD Registry data and a Medicaid draft report on covered sickle cell disease services.
- Officer elections for Chairman and Vice Chairman
- Review of three commissioner vacancies, including the Medicaid Director and two Governor appointees
- Review of SCD Registry data points from the Steering Committee and LDH Guidance Team
- Discussion of Medicaid draft report of covered SCD services
The commission did not have a quorum present, preventing officer elections and the approval of previous meeting minutes. Members discussed a communications plan for sickle cell disease and identified three vacant commissioner positions.
- Officer elections not held due to lack of quorum
- Approval of minutes from May 24, Aug 15, Dec 6, 2022, and Feb 7, 2023, not voted upon due to lack of quorum
- Identified three vacancies: Medicaid Director designee and two Governor appointees for persons living with SCD
Louisiana Sickle Cell Commission
The Louisiana Sickle Cell Commission is scheduled to meet from 2:00 p.m. to 3:30 p.m. The agenda contains only procedural information regarding the meeting time and location.
The commission did not have a quorum present to vote on a Chairman and Vice-Chairman. Members reviewed membership vacancies and received reports on the Sickle Cell Registry, Medicaid coverage, and patient navigation. Five members requested a special meeting to vote on leadership.
- Officer elections not held due to lack of quorum
- Requested special meeting to vote on Chairman and Vice-chairman